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| the following are a list of NAI meber organisations. Click on their headings to visit their respective websites. NAI is not responsible for the content of its member websites. | |
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| Acquired Brain Injury Ireland | |
| Acquired Brain Injury Ireland was set up in June 2000 in response to the need for services for people with an Acquired Brain Injury (ABI). ABI Ireland aims to enable people with ABI to live an independent life in the community, by providing and maintaining a supportive living environment.
Acquired Brain Injury Ireland provides residential assisted living services, community rehabilitation support services, day services and case managers for people with an acquired brain injury. | |
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| Alzheimer Society of Ireland | |
| The Alzheimer Society of Ireland is the leading dementia care organisation in the country with 26 local branches and a national network of Day Care Centres, Home Care/Support Services, Carer Support Groups and one residential Respite Centre. The Society also operates the Alzheimer National Helpline offering information and emotional support. The Society aims to provide support and services to people with Alzheimer's disease and related dementias, their carers and families; raise awareness and provide information about dementia; influence policy regarding care and support services; and represent the views, needs and concerns of all affected by dementia. | |
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| Aware | |
| Aware is a voluntary organisation formed in 1985 by a group of interested patients, relatives and mental health professionals, whose aims are to assist that section of the population whose lives are directly affected by depression. 300,000 people in Ireland currently suffer from depression but many hide thier depression and never get help. Aware, since its foundation in 1985 has been working energetically to bring support to survivors of depression and thier families and to dispel the myths and misunderstandings of this devastating illness. Aware runs a helpline servicenationwide support groups, education services and is involved in promoting research in the area of depression. | |
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| Brí | |
| National Rehabilitation Hospital
Rochestown Avenue
Dun Laoghaire
Co. Dublin
Phone 01 235 5501
e mail: info@briireland.ie | |
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| Brainwave - the Irish Epilepsy Association | |
| 249 Crumlin Road,
Dublin 12
Tel 01 4557500
Brainwave, The Irish Epilepsy Association, seeks to improve the health (health gain) and quality of life (social gain) of people with epilepsy. Provides services to individuals with epilepsy, their families and carers; including support, advocacy and education. Provides information on all aspects of epilepsy. Organises conferences, study days and work shops and produces printed information. Also supports research into epilepsy. | |
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| Cheshire Ireland | |
| Cheshire Ireland provides supported accommodation, respite and community services to adults with physical disabilities. We currently operate 18 centres around the country with new accommodation and respite services in the course of development.
The Cheshire ethos is one of supporting people in their individual choices as to how they lead theirlives. We listen to people with disabilities and respond to their wishes and needs in ways that respect individuality and maximise opportunities for choice.
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| Chronic Pain Ireland | |
| Carmichael House, North Brunswick St, Dublin 7.
Phone 01 804 7567
e mail info@chronicpain.ie
Chronic Pain Ireland is the principal support group in Ireland for the 400,000 people of all ages suffering with chronic pain. CPA is a registered charity, run by a committee of volunteers and is in existence for the past thirteen years. Monthly support meetings are held in Dublin and a quarterly Newsletter is sent out to members.
Chronic Pain Ireland also runs an out-reach programme of lectures and support in the regions. In addition the group places information stands in the major Dublin hospitals during European Week Against Pain and at public information medical lectures and health shows throughout the year. | |
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| Dystonia Ireland | |
| Dedicated to serving the needs of all dystonia affected persons and their families by offering support, information and advice. Aims to raise the level of awareness amongst the general public and the medical profession; organises conferences and produces information. Also promotes research into the causes and treatment of Dystonia. | |
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| The Dyspraxia Association of Ireland | |
| The Dyspraxia Association was formed in 1995. It aims to raise awareness of Dspraxia in Ireland, ensure adequate resources are available to support the needs of children and parents, improve diagnostic services, organise meetings for parents and children, provide a patient/professional link and provide an information and sharing network for parents. | |
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| Enable Ireland | |
| Enable Ireland is a leading national provider of services for people with disabilities and their families. Our 14 regional centres currently provide services for 3,000 children and adults.
Our services for children and their families cover all aspects of a child's physical, educational, and social development from early infancy through adolescence. For adults we offer a range of services covering personal development, independent living, employment, and social and leisure activities.
Enable Ireland's Retail and Fundraising division operates a nationwide chain of clothing shops. All proceeds from the sale of items in the shops go to Enable Ireland's capital expenditure programme.
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| Headway Ireland | |
| Headway (Ireland) Ltd was established in 1985 as a support group by families and interested professionals to address the needs of people with Acquired Brain Injury (ABI) and their carers. Twenty years on, the organisation has expanded to provide a range of community based psychological and social rehabilitation services for people between the ages of 16-65 affected by ABI. We work to heighten public and political awareness of ABI and the impact it has on individuals, families and carers. Our helpline runs between 9am-1pm and 2pm and 5pm, Monday to Friday. It provides information on ABI, gives details on our and other services, and provides a listening ear when required. | |
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| Huntington's Disease Association of Ireland (HDAI) | |
| Carmichael Centre, Carmichael House,
North Brunswick St.,
Dublin 7
Tel: (01) 872 1303
Fax (01) 872 9931
E-Mail: hdai@indigo.ie
Freefone: 1800 393 939
HDAI is a family support and information centre. It provides consultation, information and individualised support to those diagnosed with Huntington?s Disease, their families and their health care teams. | |
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| Irish Motor Neurone Disease Association | |
| Coleraine House
Coleraine St
Dublin 7,
Ireland.
FREEPHONE:1800-403-403
Tel:00-353-1-8730422
Fax:00-353-1-8735737
The Irish Motor Neurone Disease Association is run by volunteers and was formed to provide support for Irish MND sufferers.
The society is involved in fund raising, patient and family support, equipment supply, research support and funding.
The IMNDA publish a quarterly newsletter "Connect". | |
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| Migraine Association of Ireland | |
| Unit 14
Block 5, Port Tunnel Business Park
Clonshaugh, Dublin 17
Phone 01 8941280
Helpline 1850 200 378
The main aims of the Migraine Association of Ireland are:
- To provide information, support and reassurance to people with migraine and other headache disorders in Ireland.
- To raise awareness of the condition in the general population and in the population of the health profession in particular.
- To support research and to promote better treatment for people with migraine | |
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| Meningitis Research Foundation | |
| Meningitis Research Foundation's Vision is a world free of meningitis and septicaemia and to improve survival rates and outcomes. The Foundation promotes education and awareness to reduce death and disability and gives support to people affected.
The charity was founded in the UK in 1986 and opened in Dublin in 1996. Since its inception, the Foundation has invested over 16.3 million on research into prevention, detection and treatment for meningitis and septicaemia. It also produces and distributes award winning, life saving literature including symptoms cards and leaflets for both the general public and health care professionals
Meningitis Research Foundation operates a Freefone 24 hour helpline on 1800 41 33 44 | |
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| Multiple Sclerosis Society of Ireland | |
| The Multiple Sclerosis Society of Ireland is the national organisation for people with Multiple Sclerosis, (affiliated to the International Federation of M.S. Societies). It exists to facilitate People with Multiple Sclerosis to influence their lives and environment, live with dignity and participate in the community; to provide support for families and carers; to promote scientific research into causes and cure for MS and management of medical and social symptoms; to exchange and disseminate information relating to MS.
Contact us on our national information line 1850 233 233, at MS Resource Centre, 80 Northumberland Road, Dublin 4 (phone 01-6781600), and at 10 regional offices around the country.
Click the headline to visit our website. Email enquiries to info@ms-society.ie
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| Muscular Dystrophy Ireland | |
| 71/72, North Brunswick Street, Dublin 7
Tel: 01 8721501
Fax: 01 8724482
Email: info@mdi.ie
Muscular dystrophy is the collective name for a range of neuromuscular conditions, characterised by the progressive weakening and wasting of the muscles. Muscular Dystrophy Ireland was founded in 1972 and now has a membership of over 500 families and an active branch network nationwide. Its primary objective is to provide support and information to people with muscular dystrophy and their families through a range of services, including family support, information, respite, youth activities, summer camps, transport and publication of a two-monthly newsletter. It also supports research into the condition. | |
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| Neurofibromatosis Association of Ireland | |
| Carmichael Centre, North Brunswick Street, Dublin 7
Phone (01) 8726338
Fax (01) 8735737
E mail: nfaireland@eircom.net
Support group for people with Neurofibromatosis. Provides information and promotes awareness and understanding of the condition.
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| Parkinson's Association of Ireland | |
| Parkinson's Association of Ireland is a charity based in Dublin, with branches throughout the country. It aims are to help and support patients and carers by developing a support network of branches throughout the country, to make information available to patients and their families through seminars, newsletters and branch meetings on both a national and local level, to facilitate easy access to all appropriate services for people with Parkinson's and to lobby to improve those services, to help establish a network of PDNS, within a multidisciplinary setting, each in association with a Neurologist and or a Geriatrician and to promote and encourage research into Parkinson's. Headquarters are in Carmichael House, North Brunswick Street, Dublin 7. Tel. 1800 359 359
Our office is open mornings, and afternoons to 3pm, Monday to Friday E-mail: info@parkinsons.ie
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| Post-polio Support group | |
| Aims to support and inform Polio survivors in Ireland, with particular emphasis on the late effects of Polio, including Post Polio Syndrome. Also seeks to create awareness among members and the medical profession regarding the problems some Polio survivors are now facing and strives to improve their general situation. | |
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| The Rehab Group | |
| The Rehab Group is an independent, not-for-profit organisation which provides training, employment, health and social care and commercial services for some 56,000 people each year in Ireland, the UK, the Netherlands and Poland
RehabCare operates a wide variety of responsive health and social care programmes which reach into communities the length and breadth of Ireland.
Communications Department,
Rehab Group,
Beach Road,
Sandymount,
Dublin 4.
Tel: 00 353 (0) 1 2057200
Fax: 00 353 (0) 1 2057211
Email: dara.duffy@rehab.ie
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| Spina Bifida Hydrocephalus Ireland | |
| Old Nangor Road
Clondalkin
Dublin 22
Tel: (01) 457 2329. Fax: (01) 457 2328
Lo-call 1890 359 359
Email: info@sbhi.ie
Spina Bifida Hydrocephalus Ireland was founded in 1968 and is a national organisation with local branches throughout Ireland. The Association was established for the care, welfare, interest, treatment, education, advancement and rehabilitation of persons with Spina Bifida and Hydrocephalus.
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| Syringomyelia Self Help Group | |
| Millmore House
Aughnamullen
Castleblaney
Co. Monaghan
Tel: (042) 9742102
Fax (042) 9742102
Provides contact and support for people who have syringomyelia and related Neurological disorders, and their families. Telephone support and information is available. Co-operates with the medical profession in the promotion of scientific research into the cause of and cure for syringomyelia and related disorders. The group is associated with similar groups in the United Kingdom and US. | |
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| Volunteer Stroke Scheme | |
| The Volunteer Stroke Scheme was set up in 1983 to cater for stroke patients and their families. They organise home visits by volunteers, support meetings for carers and volunteer training sessions. They also produce an annual newsletter which is distributed to members and G.P.'s around the country. | |
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| The following organisations are associate members of the NAI | |
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| Irish Institute of Clinical Neurosciences | |
| The Irish Institute for Clinical Neurosciences (IICN) aims to promote the academic clinical neurosciences in the Republic of Ireland and in Northern Ireland. It organises academic meetings where teaching is carried out and where findings from neuroscience research are presented. It invites applications for grant funding for research in neuroscience and to enable travel to take place to enhance the knowledge base in neuroscience. Membership includes all consultants in Neurology, neurosurgery, neurophysiology and related disciplines. Irish Institute of Clinical Neurosciences, P.O. Box 351, Limerick
Telephone 061 203040.
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| Myasthenia Gravis Association | |
| The Myasthenia Gravis Association is dedicated to establishing a network of local branches across Ireland, through which it can provide comfort and support to meet the needs of all Myasthenics and their families. The Association is dedicated to a programme of education that will raise the awareness of the disease with the general public and, in particular, all branches of the medical profession, for the purposes of diagnoses and treatment. The Association is also dedicated to funding medical and scientific research into the alleviation of the disease and ultimately establishing the causation and cure. | |
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| Progressive Supranuclear Palsy Association | |
| The PSP association promotes research and disseminates knowledge about progressive supra nuclear palsy; it stimulates awareness of the disease among relevant medical professionals and the general public; it brings together persons suffering from it or interested in PSP and promotes and provides facilities for the study of PSP. It provides information and support to families, a 24 hour telephone counselling service and organises local support groups. | |
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